Our Keepsake Journal is Here! 🎉

P IN FALLLeaves taking over the yard, walks in the crisp morning air, curling up with a blanket and a cup of coffee. Autumn is my favorite time of year….and I think Peyton feels the same way! This toddler loves to play in the pile of leaves; the crunchy sound guaranteed to produce a giggle. But as much as we love our days outside, it’s time to say, “Sorry Friends, we’re going into hibernation.”

The days of play dates and Target runs will give way to indoor activities and plenty of hand washing. Even though Peyton seems like a healthy little toddler, she’s still considered a “22 weeker”. Her immune system is not like other kids her age. We learned that first hand in September, when Peyton landed in the hospital for a week. Her Nicu doctor thinks P most likely came down with the enterovirus, a nasty respiratory illness that has swept the nation. It turned into pneumonia and Peyton quickly became a hospital patient.

P HOME FROM HOSPITALLast year at this time, Peyton finally came home after a 4 month Nicu stay. We locked up the house and kept most people away. It was extremely difficult to turn friends and family away, especially when our child, who wasn’t expected to survive, arrived at home. After the year we had experienced, Ryan and I wanted to shout “She’s Home” from the rooftops! We were overwhelmed with excitement that our little baby was doing so well. But we also knew the risks she faced: A simple cough could kill her; a cold could land her back in the hospital. So we followed her doctor’s recommendations. We required visitors to get the flu and pertussis vaccines. We kept bottles of antibacterial gel all over the house and a box of medical masks came in handy anytime we felt the hint of an illness. We only allowed close friends to visit; people who had previously visited Parker and Peyton in the Nicu. And we didn’t leave the house with Peyton, unless we were going to a doctor’s appointment or therapy. It’s enough to make you go stir crazy…and I sure did after a few month! But, it worked. Peyton didn’t even come down with a cold. After the flu season ended, we emerged from our cocoon. We began to take Peyton on errands and introduced her to our favorite restaurants and activities. And the amazing thing: It took her 10 1/2 months of being home before she came down with her first illness.

image1Since it worked last year, we are sticking to hibernation for at least one more year. Peyton is doing so well and slowly catching up in size, but her immune system is premature and her lungs are still very weak. So, forgive me if I tell you that we will be skipping your Christmas party. And don’t take it personally if I say that we are not inviting any visitors to our home. We are simply trying to protect our surviving triplet, our precious little cargo. We’re keeping a low profile, away from germs…We will see you all come spring!

 

 

 

 

 corky creations

 

 

So God Made a Mother book by Leslie Means

If you liked this, you'll love our book, SO GOD MADE A MOTHER available now!

Order Now

Check out our new Keepsake Companion Journal that pairs with our So God Made a Mother book!

Order Now
So God Made a Mother's Story Keepsake Journal

Stacey Skrysak

Stacey Skrysak is a local television news anchor in Illinois, but her proudest role is becoming a mom after years of infertility. Stacey is mother to a 22-weeker surviving triplet and two angels. Even though two of her children were only alive for a short time, her triplets have touched thousands of people around the world. Through her blog, Stacey has become a voice for infertility, premature birth and child loss. These days, she sprinkles in the trials and tribulations of raising a daughter, who was once nicknamed “The Diva of the Nicu.”

My Baby Was Stillborn, But Still Born

In: Child Loss, Grief
My Baby Was Stillborn, But Still Born www.herviewfromhome.com

My baby was stillborn, but still born. In a cool white hospital room where so many had been born before. My body trembled and shook as his body worked its way out of my womb and into the hands of a doctor. He was void of breath, of sound, of movement, but he was still born. My baby was stillborn, but still lived. In the darkness of my womb. The outline of his body was visible against the darkness of the screen, his presence undeniable. The sound of his heartbeat drowned out the sound of mine as I watched his...

Keep Reading

I Am Not My Child’s Death

In: Cancer, Child Loss, Faith, Grief
I Am Not My Child's Death www.herviewfromhome.com

We are NOT what has happened to us or what this world says we are. That is not what defines us. While we are grieving parents, that is not what our whole story has to be about. Although, at times, we feel that our story is over. We ask, how do we go on and live full lives without our sweet Sophie with us? I’m still not 100 percent sure I know the answer to that. BUT the Lord says I am beloved. I am redeemed and accepted. I am holy and chosen. I am righteous and complete. I am...

Keep Reading

The Hardest Moments After Losing a Child

In: Child Loss, Grief, Motherhood
The Hardest Moments After Losing a Child www.herviewfromhome.com

Within the first three months following the death of my newborn daughter, I participated in one baby shower, attended two first birthday parties, had multiple infants in and around my home, and watched not one, not two, but five of my closest friends take happy, healthy babies home from the hospital. And in the midst of my own life-altering experience, I purchased, wrapped, and mailed a gift to every one of those new babies, because they deserved one. In the days and months after my daughter died, I didn’t run away or hide from babies at all. And this seemed...

Keep Reading

6 Commitments I Made to Myself After Child Loss

In: Child Loss, Grief, Kids, Motherhood
6 Commitments I Made to Myself After Child Loss www.herviewfromhome.com

Following the death of our infant daughter, I found myself facing an opportunity to activate the immense power of personal choice. Time and time again. Hour after hour, day after day. It felt as if every moment that passed provided me with a choice: to let the grief consume me, or not. In the midst of the most emotionally complex experience of my life, my ability to survive felt as simple as that. Will grief consume me, or not? Once I began believing that Olivia had lived out her life’s plan completely—that she had come, she had loved, she had...

Keep Reading

To the Moms and Dads Who Suffer Loss: You Are Not Alone

In: Child Loss, Grief, Infertility, Motherhood
To the Moms and Dads Who Suffer Loss: You Are Not Alone www.herviewfromhome.com

You are walking the hardest path anyone will ever walk—living this life without your children. Your losses have come in many shapes and sizes. You’ve lost tiny heartbeats early in the womb. You’ve screamed and sobbed through labor to deliver a silent but perfect little bundle. You’ve held a fragile infant for hours, days, weeks, or months, only to give him back to Heaven. You’ve watched your little one grow into a curious toddler and then held her a final time as disease or an accident took her away. You’ve lived a full childhood with your baby and even watched...

Keep Reading

A Letter to My Mama, From Your Baby in Heaven

In: Child Loss, Faith, Grief, Miscarriage
A Letter to My Mama, From Your Baby in Heaven www.herviewfromhome.com

Dear Mama, I know you miss me and wish you could watch me grow up. But instead, you sit in that rocking chair, tears streaming down your face, arms wrapped around the blanket that was supposed to be mine. I see you crying, Mama, wishing you could hold me. Wishing you could look into my eyes. Wishing you could hear me cry or call you “Mama”. I want you to know Jesus rocks me to sleep every night and while He does it, He tells me all about you. I know tulips are your favorite flower and that every spring...

Keep Reading

God Actually Does Give Us More Than We Can Handle

In: Child Loss, Faith, Grief
God Actually Does Give Us More Than We Can Handle www.herviewfromhome.com

I used to be someone who said, “God doesn’t give you more than you can handle.” That was before I had faced any hardships in my life. I didn’t know who God truly is. When people are going through something hard and decide to share it, it makes people uncomfortable. It’s hard to watch others who are hurting, and it’s hard not knowing how to help when it’s someone you love. “God doesn’t give us more than we can handle” is a very well-meaning encouragement that I know is meant in love. I’ve said it before! But it’s not really...

Keep Reading

Why I Got a Tattoo With My Teenage Daughters

In: Child Loss, Grown Children, Motherhood, Teen
Why I Got a Tattoo With My Teenage Daughters www.herviewfromhome.com

“We should get a tattoo, Mom.” I laughed. I knew it was just my younger daughter, Sarah’s way of getting herself a tattoo—to go along with her nose ring, and six ear piercings. She didn’t really want me to get one. Did she? “Truth!” My oldest, more conservative daughter, Elle, chimed in. “We should all go.” What? Home from college just five minutes, maybe she was bored. I heard tattoos really hurt and she hates pain, like I do. I glared at my two daughters, now 17 and 19. They can read my mind. I knew it! There was something...

Keep Reading

I’m Not Sure How Long I’ll Need an Antidepressant to Feel Normal…and That’s OK

In: Cancer, Child Loss, Grief, Mental Health
I'm Not Sure How Long I'll Need an Antidepressant to Feel Normal...and That's OK www.herviewfromhome.com

I tried to wean off of Zoloft and couldn’t. And that’s OK. I had never really been aware of the world of antidepressants. My life has been relatively uneventful—with the normal ups and downs that most of us go through. I knew people on medication for depression but never understood. How can you be THAT sad that you can’t just be positive and make the best of your circumstances? How can someone be THAT unhappy ALL the time to need medication? I didn’t get it. I felt bad for people going through it. Then my 2-year-old was diagnosed with Stage...

Keep Reading

To the Young Warriors Fighting Cancer, You Are Superheroes

In: Cancer, Child, Child Loss, Health
To the Young Warriors Fighting Cancer, You Are Superheroes www.herviewfromhome.com

Most people never get to meet their heroes. I have, in fact—I have met many heroes. These heroes didn’t set out for greatness; they fell victim to a terrible disease and faced it with courage, might and bravery like I have never seen before. And when we talk about this type of battle, there is no such thing as losing. whether the battle ended in death, life, or debility, each of these heroes defeated. My heroes are the innocent children who battle cancer. I high-fived, hugged, wept over, laughed and played with my heroes for 10 years as a nurse. And you better believe I...

Keep Reading