5 Ways to Practice Inclusion, from a Mom Raising a Disabled Child
My 6-year-old daughter JJ, has a rare genetic disorder called Rett Syndrome. She has a wheelchair, a speech device, and…
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Rett Syndrome
A Diagnosis Is Redefining Our Family
When Aiden, my spirited and curious 11-year-old, asks about the early days of his sister Lexi’s life, he doesn’t remember…
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Love Beyond Words
My daughter Lexi lost her words and some of her motor functioning when she was two years old. She was…
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10 Things Your Special Needs Mom Friend Might Not Be Telling You
Two years ago, my youngest daughter was diagnosed with Rett Syndrome—a progressive genetic disorder characterized by the inability to speak,…
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Rett Syndrome Is Only Half of Our Family’s Story
Anxiety. Depression. Perfectionism. Guilt. An over willingness to please. Feelings of neglect. These are just a few of the issues…
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