7:30 a.m. Cut the pill with the pill cutter. Crush the pill with the pill crusher. Carefully pour the pill…Continue Reading
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In May 2016, my husband, Miguel Cervantes and I received two life-changing pieces of news: Miguel had landed the starring role of Alexander Hamilton in Hamilton: An American Musical in Chicago and our then 7-month-old baby, Adelaide, was diagnosed with epilepsy and eventually, infantile spasms, a severe form of pediatric epilepsy. I transitioned from being our family’s primary breadwinner to a stay-at-home mom/nurse/pharmacist/therapist, and it was hard, like, REALLY hard. We hoped that science would catch up to our daughter but that was not meant to be. She passed away on October 12, 2019. I am still trying to figure out life without her, but by writing my blog “Inchstones”, and hosting CURE Epilepsy's podcast “Seizing Life”, I am able to feel productive, make sure Adelaide’s struggles were not in vain, and keep hope alive for all the Adelaides to come.