As a Medical Mom, I Measure Growth Differently
In most homes, the marks on the wall are a simple celebration of time passing. They are pencil lines that…
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A Gift for Mom! 🤍
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Rare Diseases
By Carolyn Moore Celine Dion Announces Heartbreaking Diagnosis
When the movie Titanic when was released in 1997, a gaggle of us as teen girls fell in love. Maybe…
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On the Strange Grief of Unimagined Milestones
Leggings will work, and tops. Dresses . . . no. Too fussy. Joggers are cute, but bulky. When the physical…
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By Alethea Mshar 4 Reasons Rare Disease Day Might Really Matter To You
There's a day for everything. From hug day to pie day and pretty much everything in between. I could see…
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