Free shipping on all orders over $75🎄

Having my medically complex child changed me. For those who don’t know, I was an incredibly shy, quiet, and self-conscious person. And I hate that because I had a lot to say. But I was so self-conscious that I preferred being judged for what I didn’t say instead of being judged for who I actually was.

RELATED: I’ll Always Be Too Much For Some People

And then I had Payton. I didn’t have the choice to be quiet anymore . . . I was forced to find my voice. I was forced to find my voice in order to be my daughter’s voice because she needed me. 

And with that, I became the person I was meant to be. Unapologetically myself. 

I needed to have a voice for my child, but the lesson came from watching my child be exactly who she was everywhere we went, without a care in this world about what anyone thought of herwatching that taught me to love being exactly who I am.

RELATED: Behind Every Special Needs Kid Is A Fierce Mom Who Loves Them

I won’t be everyone’s cup of tea. I’ll be too much for some people, too loud and too passionate, but I don’t care. Those are all the things I have always been but was too afraid to actually be.

Once upon a time, I thought I would be teaching my daughter to take on this world with confidence, turns out she has been the one teaching me.

I have grown into the woman I was meant to be. The woman I don’t think I would have become without my medically complex daughter.

Originally published on the author’s Facebook page

So God Made a Mother book by Leslie Means

If you liked this, you'll love our new book, SO GOD MADE A MOTHER available now!

Order Now

Carla Moore

 A mom raising a child with a rare disease sharing our journey to educate and advocate.

To My Nonverbal Son: Thank You For Giving Me a Voice

In: Fatherhood, Tough Times

Dear son, I remember the moment it truly hit me that your autism was forever. And not just a word. Or a thing that other people’s kids had. It wasn’t when your mom told me that something seemed off. Or when she did the checklists late at night. I remember I got so mad at her. I defended you. I listened to her say things like nonverbal and delayed and I refused to believe that was you. I couldn’t figure out why she was looking for something that simply wasn’t there. Those kids weren’t you. I mean, we had things...

Keep Reading

The Grace and Grief of Being a Medical Mama

In: Faith, Motherhood
Hospital bed and IV stand, black-and-white photo

Medical mama—this title and this view hit me. It hits me at different times and in different ways, but it hits me, hard.  Some days, I crumble with thankfulness that God has such a specific plan for my sweet, golden, middle daughter, that He would make ways where it feels there is no way.  There are other times when it hits me with anger and bitterness because I can’t figure out why, in a world full of medical interventions, this is our “fix.”  It hits me.  In the wee hours of another night in the hospital, it hits me that grace...

Keep Reading

Food Allergies Won’t Stop Her—How My Daughter Is Teaching Me to Be Brave

In: Kids, Motherhood

Dear daughter, I know sometimes you wonder if you’ll ever do normal things without me hovering over you. Double and triple-checking your snack labels and drilling you about whether your allergy meds are packed and ready. It’s a lot for you to carry, physically and emotionally. But you’re so strong, sweet girl. Flexible, too. You can do this because you were built for it. And someday, someday, you’ll see it: that this story is yours because you carry it with grace. You don’t complain much, and when you do, you follow it up with a wise comment, saying this sort...

Keep Reading