As a Medical Mom, I Measure Growth Differently
In most homes, the marks on the wall are a simple celebration of time passing. They are pencil lines that…
Continue ReadingA Gift for Mom! 🤍
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In most homes, the marks on the wall are a simple celebration of time passing. They are pencil lines that…
Continue ReadingThere is nothing simple about raising a medically complex child. We carry emergency plans the way others carry wallets. Med…
Continue ReadingThere are moments in life when you feel like you’re shattering from the inside out, when your heart aches so…
Continue ReadingThe night my daughter woke up screaming at 3 a.m., I knew something was wrong. Her cry wasn’t the half-asleep…
Continue Reading“But the Lord is with me like a mighty warrior; so my persecutors will stumble and not triumph over me.”…
Continue ReadingAnother seizure. I watch my daughter’s face crumble. Not just from the pain, but from the weight of it all,…
Continue ReadingI stood with the other moms, holding back tears as I gave Olive one last squeeze before sending her toward…
Continue ReadingMy husband, Nick, looked it up one night, just after the diagnosis. We lay in bed, our seashell-printed comforter offering…
Continue ReadingMy daughter is in the hospital again. A longer stay this time. I’m tired. I miss my other children. They…
Continue ReadingShellshocked, I stand beside the NICU bed. My tiny son is lost in a maze of tubes and wires. Confused…
Continue ReadingIt was December 21, 2020. Olive—13 months old—sat on our kitchen floor. I’d combed her wispy blond hair carefully to…
Continue ReadingDear advocating parent, Let me start by saying I know that you are wildly underrecognized, and I know you don’t…
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