Grief Kids Motherhood

To the Mama of the Newly Diagnosed Baby

To the Mama of the Newly Diagnosed Baby
Written by Katie Brady
I sat in my chair holding my brand new baby boy. Three weeks old. His head was stained by my tears. To say the last few weeks have been ridiculously hard was an understatement. Henry was diagnosed with Cystic Fibrosis.
Do you know what Cystic Fibrosis is? Sure, I had heard of it, but I didn’t know much. Cystic Fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe. Life threatening. Surely I could never use those words in the same sentence while talking about my baby boy.
I took Henry’s diagnosis especially hard. The two weeks after meeting with the doctors were a blur. Lots of medicine. Lots of breathing treatments. How would I do all of this and take care of my three daughters too? What about my husband? Would he still love his sad wife? Heck, I couldn’t even take care of myself right now. I was a depressed mess. I’m certain I fell to my knees a thousand times praying for God to make this go away.
Cystic Fibrosis is a progressive disease. This means it will progress and worsen with age. I remember as Henry’s first birthday approached, I locked myself in the bathroom because of a nasty panic attack. Is this the healthiest he will ever be? I felt like I would never be the woman and mom I once was. My son’s disease had taken over all my thoughts and actions.
Time has passed and the sun has come out and I have pulled myself out of my dark hole. Medicine, breathing treatments and doctor appointments are all the norm for my family now.
The truth is, if you are a parent of a child with a chronic illness you are going to feel overwhelmed. You will be exhausted and sometimes downright terrified. But, I promise you things will be amazing too. There is so much beauty to this life, and these hard bumpy roads truly make you appreciate the good days. Stay strong mama of a newly diagnosed baby. I promise you that you will feel like you again. You will survive this and you will do anything to make sure that baby survives too.
“Every experience, no matter how bad it seems, holds within it a blessing of some kind. The goal is to find it.”    –Buddha
To the Mama of the Newly Diagnosed Baby

About the author

Katie Brady

Hi! I’m Katie Brady! I live in Omaha, Nebraska with my husband and four kids. I have a six-year-old, four-year-old, three-year-old, and a one-year-old. Three girls and a little boy! So, I’m kept busy at home with them. I’ve always had such a passion for writing, but since my youngest was diagnosed with cystic fibrosis it has become a form of therapy. I’m so excited to share our life with everyone!


  • My son was suspected to have Cystic Fibrosis – he was born with an atresia of his bowel – a condition that the doctors said meant he had a 90% chance of having CF. He had his first operation at 6 hours old, and the following four weeks (until he was able to have his sweat test) were excruciating. Was he? Wasn’t he? Every little cough or breathing difficulty made me question everything. Thankfully he was cleared of CF, had his second surgery at just 7 weeks old and released from NICU on day 66 of his life. Because of our experience CF holds a place in my heart – but one of the most uplifting things I heard during this time was that one of the doctors in the hospital my son was at had CF himself. He didn’t let it stop him from doing what he wanted to with his life. I wish your son and your family health and happiness <3 xo