Our Keepsake Journal is Here! 🎉

Life’s funny, isn’t it? Just when you think you’ve got the whole motherhood thing figured out, the universe throws a curveball. And, oh boy, did it throw me one with my second baby.

There I was, feeling like a seasoned mom with my firstborna healthy, vivacious toddler who was 16 months old. Our breastfeeding journey had its hiccups, an early tongue-tie diagnosis that did little to deter our bond. Fourteen months of nurturing, nighttime cuddles, and feeling powerful, like my body was doing exactly what it was meant to do.

Enter my second baby. A fresh chapter, a new story. I dreamt of another long, cherished breastfeeding journey. But dreams and reality, as I soon learned, don’t always align.

You know those moments when your heart skips a beat? The kind where the weight of uncertainty, fear, and anticipation presses down on you. Laryngomalacia was that word for me. A condition that wasn’t just a part of some medical dictionary but had become a part of my world.

Laryngomalacia, also dubbed the “floppy larynx,” is when the tissues around a newborn’s voice box are softer than they should be, causing them to collapse. This isn’t just a fact I googled. This was happening to my baby. Breathing difficulties, feeding challengesit felt like an unending spiral.

RELATED: 9 Things the Medical Mama Needs You To Know

As a paramedic for over a decade, I had faced more than my fair share of babies in distress. It’s quite another thing when it’s your own baby. His noisy breathing and me breastfeeding him every hour . . . exhausting.

Breastfeeding, as beautiful and natural as it is, isn’t always a walk in the park. With my firstborn, I had sailed through, minus the tongue-tie hiccup. But this was uncharted territory.

Every feeding felt like a battle to ensure my baby got the nutrition he needed, a battle against the weight of emotions that threatened to drown me. And the worst part? The world around me seemed oblivious. “Just keep offering your boob,” they’d say. I wanted to scream, “Don’t you think I’m trying?” He would latch on but the poor kid just couldn’t breathe properly so my milk would trickle and flow from his mouth with every suck.

The biggest battle was with the medical system. How many times was I brushed off at the emergency department? Three. Three times too many. Every mother’s instinct, every ounce of my paramedic training, screamed that something was off. But no one was listening.

Then, thankfully, a cancellation and a chance visit to the pediatric ENT surgeon. Finally, validation. The concern in his eyes mirrored my own. My baby needed surgery, and he needed it now.

The relief that it wasn’t all in my head was overwhelming. I had been right all along my baby boy didn’t have “a small nose,” he had a problem with his airways, and finally, someone was taking me seriously.

Amidst the whirlwind of emotions, there were logistics to consider. My firstborn, barely a toddler, needed me. My second, about to undergo surgery. The weight of it all was immense. And yet, a tiny flame of hope flickered. The journey was far from over, but I wasn’t alone. There were others, mothers, fathers, caregivers, who had walked this path, who had faced these challenges, and come out stronger.

RELATED: I Am My Child’s Advocate—and Other Valuable Lessons a Stay in the PICU Taught Me

I’ve always been a seeker of knowledge. Perhaps it’s my medical background or just the innate need to understand. As if understanding would give me a semblance of control in this uncontrollable situation.

Did you know? Laryngomalacia is quite common. It is the most common cause of chronic stridor in infancy. The majority of infants improve by 18-20 months of age. Only a small percentage, like my baby, need surgical intervention. But these weren’t just facts. They were a testament. A testament to every little warrior, like my son, and every resilient mother, like me, navigating this journey.

The rollercoaster of emotions was real. One moment, celebrating my firstborn’s milestones, and the next, grappling with the overwhelming weight of my second’s medical needs. I’d faced many emergencies, made split-second decisions in the back of an ambulance, but this? This was my baby. And every “professional” dismissal and every “you’re overreacting” was crushing.

I want to tell you, from one mother to another, trust yourself. Trust that unyielding instinct that tells you when something’s not right. Seek, fight, advocate. Because at the end of the day, we are our children’s fiercest advocates.

To every mom navigating a similar path remember: amidst the chaos and uncertainty, there’s a community out here. Lean on it. Draw strength from it. And always, always believe in the power of your love.

So God Made a Mother book by Leslie Means

If you liked this, you'll love our book, SO GOD MADE A MOTHER available now!

Order Now

Check out our new Keepsake Companion Journal that pairs with our So God Made a Mother book!

Order Now
So God Made a Mother's Story Keepsake Journal

Katie McCann

Katie McCann, founder of From Bump To Bubble, combines her BSc in Psychology and breastfeeding counselor certification to provide parents with science-backed insights and practical parenting tips. As a mother of two, she offers real-world parenting advice on her blog, serving as a valuable resource for both moms and dads. With over a decade of experience as a former HCPC paramedic, Katie also shares essential knowledge on emergency care, empowering parents to confidently handle health challenges.

Apology of a Special Needs Mom

In: Child, Motherhood
woman and child look out window www.herviewfromhome.com

Many times, being the parent to a medically fragile or special needs child means missing out. There are so many extra precautions that must be taken. Every outing or event takes extra time and preparation. Each decision must now be made based on the needs of your child. And often, amidst the missing out, other people in our lives don’t fully understand. OR, we feel that we have to explain ourselves every. single. time. We want our friends to understand we desperately wish to be at their children’s birthday parties, or those nights out, or their baby showers, or bridal...

Keep Reading

So God Made a Mother With a Willing Heart

In: Motherhood
Mother and daughter smiling, color photo

You may have heard it said that God only gives special children to special parents.   But, when God made the mother of a child who has special needs, the Lord did not need a special mother, the Lord needed a mother who was willing. God needed a woman who would say yes to an assignment that many choose not to accept. The Lord knew she wouldn’t feel qualified to raise a child with special needs, but that didn’t matter because God would equip her every step of the way. Since there is no such thing as a perfect mother,...

Keep Reading

You Become the Advocate They Need When Raising a Child With Special Needs

In: Faith, Motherhood
mother and child with special needs www.herviewfromhome.com

“I don’t know how you do it.” How many of us have heard that line? As a special needs mom, I hear this weekly and each time I answer the same way with a forced smile on the same words falling from my mouth: “You just do.” But, can I secretly tell you something? Honestly, I don’t know how I do it. When we received my son’s autism diagnosis that fateful day over three years ago, I didn’t know how we would do it. All the questions, the what ifs, the whys and the hows filled my head with doubt....

Keep Reading